Wow! It’s December already!
I had a pleasant surprise last night. I came home from work and Trina was home! She’s staying until Friday afternoon. Stephanie’s mother came down and will be leaving on Saturday so this will give her some good time with her grandson and give Trina some rest!
One thing that I try to be careful of when posting this info is to not post too much info. I try my best to respect Isaiah and Stephanie’s privacy. However, sometimes there is a need to throw a little subtle hint out to help show the seriousness of the situation, if that isn’t already obvious. It is with that in mind that I post a little more info today than normal. I won’t go into specifics but will just let you know that there are other things going on around us and there are decisions having to be made everyday concerning the treatment, concerning payment, concerning the future! I’ll try to be as thorough as I can while at the same time trying to be tactful!
The outlook from the surgery looks pretty good. The CSF (spinal fluid) had been draining with a pinkish or red tinge to it but it has been perfectly clear since the surgery. Hopefully this will help to eliminate this infection and help us to move forward.
Isaiah continues to be active and playful, except when the therapists come in to work with him and he gets cranky! He would rather do stuff for family than strangers!
If things progress well, we may be looking at a surgery Monday to place the permanent shunt. If that is the case then it wouldn’t be long after that they could place the chest catheter for gathering stem cells and the other hose to administer the chemo. This in turn will lead to the start of chemotherapy. All these things are necessary to try to eliminate this cancer. It will be a long process and I’m sure there will be lots of up days and down days. Please pray for both Isaiah and Stephanie as they will both need super strength during this time.
I’m not sure how well the updates will be the next few days. With Trina being at home, we will still try to get as much info as we can but it probably won’t compare with actually being there and speaking with the doctors.
Also, I would just like to throw this out there. When you are praying, please ask for an intervention so that the insurance company will opt to pay for these procedures. No one needs to worry about these things at this time but it seems they always have to pop up, don’t they? :-(
One last thing. I was told yesterday that this is a very advanced cancer. This is why they want to use a couple of experimental treatments to fight it. If this is true, and I don’t doubt the source, then we really, really need to pray. I don’t doubt that God is able to heal my little grandson, but there is always strength in numbers! I still feel that God sometimes has to take us to the brink so that we (and others around us) can acknowledge that He is the one who has healed this! After all, if it was something that normal medicine could heal, why would you need Him? That is a rhetorical question, I know you always need God but I am trying to make a point!
So, there is lots of good, positive info to pass along but in the background there is the reality of what we are all facing here! We need a divine intervention and I don’t care where that comes from. Prayer, fasting, or whatever method of getting God’s attention.
Thanks for all your prayers and support.