Sorry there wasn’t an update yesterday. The Ronald McDonald Room was closed because there were no volunteers. Guess that is part of the holiday season!
Yesterday was an interesting day. We arrived in Durham about noon and got to the room just in time for Steph and her sister to go do some Black Friday shopping. We got to sit with Isaiah for about 4 hours and I was able to enjoy seeing him smile for the first time in quite a while (at least for me). Trina was rubbing some lotion on his feet and in between his toes and he just smiled so big and gave a little giggle! It really made my day!
The doctors are still trying to get the infection under control. They added a third antibiotic and, temporarily, it seemed to be working. His temp got down to 99 but a few hours later it was back to 101. It still goes up and down but we are hoping to see some change soon!
I might ought to take the time to clear something up from my previous post. I had mentioned that the doctors had said that he had blue-cell cancer and that there were five different types of this cancer. I failed to mention the type that they had finally told us it was. Isaiah has been diagnosed with medullablastoma. The survival rate for this is higher than 15% I had described in my last post. However, it is a very fast moving, malignant cancer and the doctors are doing their best to get ahead of it. As soon as we get past this infection and decide how to handle the drainage of his spinal fluid, the plan is to do at least 9 weeks of chemotherapy. This will be intraveneous and also oral.
This type of cancer is normally found in boys 4 years of age or greater. Isaiah’s case is unusual as the doctors are having to deal with the best way to treat this with a 20 month old baby!
Anyways, back to the present. Today, so far, Isaiah has been doing OK. He had some pretty good moments this morning when his mother was playing with him and he was just a little giggle box! He was smiling and playfully swatting at his mother. We were really enjoying it and then he had a little time of throwing up. That is where I am at. The ladies are cleaning him up while I sneak off and post a little something for everyone to know what is going on.
I’m going to be heading back to New Bern today and my wife will stay behind to help Stephanie. I’m going to try to enjoy the few hours I have left with Zay-Zay today and then I won’t be able to come back until next weekend at the earliest. I don’t mind. That will mean things are going OK and I have no emergencies come up to force me to come sooner!
I’ll try to give some more updates later when I am at my own computer. I’m not used to these little keyboards and I have to limit myself on how much time I spend on these computers.
I’m still claiming victory in this situation!